Apparently I'm just really sensitive.

I don't mean emotionally, although a few my contest that point.

I mean my sensitivity to gluten. I try my hardest to live my life 100% gluten-free. I take measures that most would say are extreme. And yet I am healthier and happier for it so I am not going to change. However, because I have been so strict from the very beginning it has not allowed me to see how sensitive I really am. Recently however I have had a couple experiences that have made me realize how sensitive to gluten I truly am.

The first one really blew my mind. For Christmas my younger brother got me some salon-grade shampoo and conditioner I like. I had already been using the conditioner for a while, but hadn't splurged on the shampoo yet. I started using them right away, and loved them! After the Christmas holidays I started to noticed that my bowels were off. I would have minor cramps and bowel inconsistency. After several weeks of this I went over everything I was eating trying to figure out what was contaminating me. But I couldn't find anything, so I just let it go. A couple weeks later I was out at the store looking for hair products, trying to find something to tame my newly curly hair (more on that later). As I was looking at products I noticed that a lot of them had gluten in them. I decided not to get them, just in case. (At the time I remember questioning myself about whether that was just too extreme.) But then I had a thought. Had I checked the shampoo and conditioner I got for Christmas for gluten? I went home and checked. The conditioner was clean, but lo and behold the shampoo had gluten. So I stopped using them and within a few days my symptoms stopped.
Now let me first say that just using something with gluten in it topically does not induce a gluten reaction. The gluten has to be ingested. I was somehow ingesting enough of it through cross-contamination that it was giving me grief. I don't know how, but it did. That was my first clue that I was WAY sensitive to gluten.

The second one didn't surprise me as much, but it still gave me a clue to my sensitivity level and how I need to live me life going forward. While I was visiting my brothers at college I attended the schools Celiac Club dinner. A group of people with Celiac Disease meet once a week and share dinner. This was the first time in two years that I went to an event and ate freely. Bad move on my part. I still got sick from it. My guess is (and I am pretty confident in this) that the food got contaminated in preparation. Students made the dinner. They all live with roommates who eat gluten and who don't have any clue about cross-contamination issues. This made me realize that my resolve to have my home gluten-free is a good one. It would be so easy to get contaminated with sticky, crumby kids running around. I want to be a healthy, symptom-free mom when that time comes.

As I am becoming more aware of my sensitivity to gluten I am also becoming more aware that many other people with Celiac Disease aren't as sensitive. And actually science is beginning to back this up. It was first thought that anyone with Celiac disease would have the same reaction to the same amount of gluten. It was also believed that Gluten Intolerance, Gluten Sensitivity, and Celiac Disease were completely different things. While it's true that the reactions and severity differ, science is beginning to think that maybe they are not so different after all. The thought is slowly coming out that maybe all of these things fit together on a continuum with Gluten Intolerance being the least sensitive and Celiac Disease being the most sensitive, with different levels of sensitivity in each defined group.

There is still a lot of research to be done to fully connect all of them and there is actually a lot of controversy in the matter. Some people believe that it's unfair to those who have Celiac Disease to link Gluten Intolerance and Gluten Sensitivity into the same category because those who have Celiac Disease have certain genes, whereas those who are intolerant or sensitive don't necessarily need to have those genes. Also, the reaction in Celiac Disease has been proven to be an autoimmune response resulting in villus atrophy, whereas in intolerance and sensitivity that's not the case.

I don't know the answer to this, but I think the information is interesting. I do believe that there is varying sensitivity levels in those with Celiac Disease and I think that science is beginning to realize this as well. It's good for me to know how sensitive I truly I am so that I can live my life in the way I need to, even though some people may think me a bit extreme....